Wednesday, February 12, 2014

The NHS and care.data

A matter that may be of interest to UK readers; the NHS may be trying to pull a bit of a fast one, and make the sale or release of personal patient data - not adequately anonymised - to outside organisations look like a patient care arrangement. The name "care.data" seems to be frankly misleading. See http://www.care-data.info/ for more on this, http://brief.care-data.info/ for a shorter version, or https://dl.dropboxusercontent.com/u/14156524/caredata_trifold.pdf for an explanatory leaflet, including a form for those who want to refuse permission for their data to be released.